What can I say about our brave little guy?
In general he seems to be getting so big, but sitting on a hospital bed in his Spongebob “button-pjs” with twenty-odd wires sticking out of his head, he looked tiny. And when we told him he was being brave, he said, “Benny brave, too.” (Benny was another kid doing the video EEG.)
The first room freaked him out more than we realized, I think. It was a four-bed room and two TVs (at least) were always on, not to mention a lot of foot traffic. We didn’t notice how uptight that room made him until we got to move to a double, from which the other tenant got released halfway through the day. Coco calmed down quite a bit there.
So now we get to taper off the medicine. It’s like taking off the training wheels, except that falling down isn’t really a learning experience.
When we told him that soon he might not be taking medicine anymore, he said, “Maybe Dr. LJ want to see Flushed Away.” In other words, he likes her and wants to reward her.
So now we’re flying without a net. And let me tell you, being a parent who is afraid of heights isn’t easy when your child isn’t. Especially a child who might have a seizure. Yesterday he was standing on the back of the sofa to reach a toy, for example. Eeek.
My dad told me about Pujol, the Spanish soccer star, and how he broke a lot of bones because he put on a cape and thought he could fly off a garage. I wouldn’t put it past Coco to do the same. One must watch one’s suggestions around him, his safety filter is set at a different level than most people’s.
On the other hand, it sure makes him a lot of fun. And if we’re not careful, Madge can easily convince him to try to do somersaults in the bathtub.